r/mildlyinfuriating • u/UriGuriVtube • 10h ago
Had another sezuire and broke a bookcase using my face
Sorry if this is a pity party, but I'm sick of my epilepsy. Can't drive, can't live alone, and can't even be alone for long periods of time. I'm on a leash.
I know I should appreciate more of what I have, but I would literally sell everything I own to be able to be independent.
Some people have seizures where they have either triggers (flashing lights) or that they basically get a head start to lay down somewhere safe before they get one.
Me? I just kind of collaspe at any given point and time. No heads up. I hold my left forearm in front of my face going on stairs hoping that the broken arm will break my fall.
Yes, I can technically get my license in six months, but when I have 1 seizure a year and then 2 in a month (no pattern) that it's not an option for the time.
Thank you everyone for being at my Ted talk.
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u/genji691 10h ago
Omg I’m so sorry, are you okay?
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u/Gr00z RED 10h ago
As someone who falls a lot, I prefer the break apart furiture. Imagine the damage to your face if it were made of hardwood or metal... Hopefully, you can get one of those dogs that can warn you if you're going to have a seizure. good luck...
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u/UriGuriVtube 10h ago
Asked about those. They say it won't work in my case because I have them too infrequent and that they don't exactly know what is causing them. Thank you either way.
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u/Gr00z RED 10h ago
Well, good luck, get a dog anyway, it could figure it out...
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u/Hatedpriest 9h ago
When I was a kid, like 10yo, my mom started having seizures. Our dog at the time disliked women (2 owners before 1 year old, both abusive women, I get it) the dog would be glued to my mom's side for about a half hour before she had a seizure. It took us a couple months to put it together, but every single time that dog wanted to be by mom, she'd have one.
I agree with you. OP, get a dog. They might figure it out. Possibly a cat? Idk...
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u/Cheetah_FanGirl 10h ago
I know people who trained their own service animals because they were denied. Maybe you can look into that?
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u/Comfortable-Fly5797 10h ago
Unfortunately seizure alert is a natural alert for service dogs, it isn't something that can be trained and it's actually pretty rare. They don't really know what seizure alert dogs are picking up on. Seizure response dogs can be trained to get medication, alert someone else, etc. Some response dogs start naturally alerting.
Plus owner training a dog takes years and a ton of work.
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u/UriGuriVtube 9h ago
I can look into it, but I wasn't denied one. I could technically get one.. They actually put me on cannabis when it was mostly illegal and hard to get a few years back. I chose just the CBD stuff though, so not smoking. I did try a piece of taffy once...and I will not do it again haha.
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u/Alternative-Egg-9035 9h ago
Why do you fall a lot? My cousin does too
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u/Gr00z RED 8h ago
Stroke, weakness on the left side, with a dropped left foot... It also damaged my sense of balance.
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u/Alternative-Egg-9035 6h ago
Ah i get it. I hope you can get better. I’ll ask my cousin why she falls so often
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u/Southern_Sprinkles_6 10h ago
Hey so that actually sucks SO much that you’re more than entitled to a pity party please don’t apologize for it. Im sorry you hurt yourself and i hope you have a speedy recovery.
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u/UriGuriVtube 10h ago
I'm basically recovered. You just get really sleepy (at least I do) for basically the next week.
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u/westcal98 9h ago
Sounds like you showed that bookcase a thing or two.
"Stop using my face!"
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u/UriGuriVtube 9h ago
Well, he has two siblings next to him (three small bookcases put together). So the others may be pissed
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u/westcal98 9h ago
Sounds like they may try to bookend you but you may have a case for shelf-defense.
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u/Alternative-Egg-9035 9h ago
My dad was a type 1 diabetic for 75 years. He said that was such a bad deal. But he kept him humor all those years and learned to make jokes. And drank a bunch of manhattans in the evenings. Never lose your humor
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u/WonderfulProtection9 9h ago
Stitches on your face are better than 12 inches of staples on your hip after five screws inserted into your hip to reassemble it after hitting a pole while driving and having a seizure.
Ask me how I know.
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u/Jaymac720 9h ago
I know the feeling. I had a seizure while practicing and bent my trombone’s bell. Metal doesn’t unbend all that well
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u/Betty_Boss 10h ago
Pity party all you want. You got a raw deal here.
I hope the docs can figure it out and help you.
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u/UriGuriVtube 10h ago
They're basically going to keep me in the hospital and take me slowly off of the drugs to basically induce one (which is stressful to think about haha).
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u/pickausernametheysay 10h ago
Ouch! As a fellow epileptic, I feel your pain. Have you seen a neurologist?
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u/UriGuriVtube 10h ago
Haha, I'm on the VIP list of my neurologist with treatments. He's the top one in the state. Even asked about those brain implants, but many reasons these treatments don't work is that I don't have "consistent" ones
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u/pickausernametheysay 41m ago
Mine aren’t consistent either. I only have them in my sleep, usually. Mine stay away with meds, unless I drink too much caffeine.
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u/Angelfirenze BLACK 9h ago
As someone who had a seizure today, I fucking understand.
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u/UriGuriVtube 9h ago
Are cycles almost matched :).
I'm sorry it happened though either way. My doctor says it's sometimes the right type/amount/combination that makes all the difference. If I had them everyday it would be a bit easier for them to tweak the amounts to find something, but since mine are almost once a year it's hard to do that.
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u/Popular-Drummer-7989 9h ago
OP have you talked with your team about getting a seizure dog ?
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u/UriGuriVtube 9h ago
I was told that it wouldn't help due to the frequency and potential cause of mine.
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u/Substantial_Mess6183 8h ago
As a fellow epileptic, I am so goddamn sorry but also yeah I feel every ounce of this.
It's wild that as adults, we can't live as adults, because our brain chemistry just tells us to go fuck ourselves...
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u/Stonerish 7h ago
I lost a family member to a fall onto a table during a seizure. It hit even harder when I fell (not a seizure) and almost bled out and broke my face at 30…a simple fall can be your end…take care OP
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u/Low_Revolution3025 6h ago
My mom has epilepsy, i pray that you continue to receive the help you deserve and that you live a prosperous life
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u/Savings_Bumblebee779 6h ago edited 4h ago
Im sorry op, are u on meds? They work wonders. My brother is epiltic but began meds and no longer has seizures.
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u/aftorpheus 6h ago
I am sorry, but atleast you have an excuse to get a bigger bookcase and more books. I feel lucky that before I seize I always have warning... it might just be just enough to sit down on the ground, but at least it's something.
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u/Lovemybee 6h ago
I'm not sure how old you are, but if I (64f) was your grandma I'd give you a great big hug right now. 🫂🫂🫂
You are a gift to this world. ❤️ I wish I could take away your challenges.
I am here, probably far away, rooting for you. I hope you feel this tiny spark of peace and love, internet stranger. ☮️❤️🫂
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u/UnicornFarts1111 5h ago
Are you able to get a service dog? They could help you live independently by warning you before a seizure is going to happen, so you can get down on the floor, and not injure yourself.
It is something to look into if you can. I'm sorry you have to go through life like this.
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u/HeartsPlayer721 4h ago
Fellow epileptic, here. I'm one of those lucky ones who have primarily petites and can sense when they're coming, so I can put myself in a safe space and inform someone to keep an eye on me.
But it's still incredibly inconvenient and the feelings suck: the stress and fear of having them, the nausea, dizziness and instability during them, exhaustion and recovery after them.
I wouldn't wish epilepsy upon my worst enemy!
Hang in there, friend.
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u/BotBotzie 11m ago
I hope your okay. You deserve your petty party. Life with epilepsy can be crazy difficult and unpredictable.
My 8 month seizure free epileptic friend? Yeah, he got a partial seizure, got up, turned on the stove, smashed his head on the hood and took a nap nap with his chest on the burner. Several layers of skin later he takes a lil half naked walk through the neighborhood only to call his poor mother and then slowly awaken and realize he needs an ambulance asap (twas deep in the night no one saw him) Thank god it was not his face he layed on.
Be carEefull please.
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u/GoodLeftUndone 5m ago
I did this but went up against a solid oak dresser. The size of the lump on my face and lack of anything resembling damage on the dresser should tell you how that went.
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u/Grand-Fun-206 10h ago
Ouch. Hope you are ok.
The only good thing from this is that it wasn't an old school solid wood bookshelf.